1 April 2025
DEBRA UK is the national charity and patient support organisation for people
living with epidermolysis bullosa (EB).
EB is a group of rare and incredibly painful skin conditions that cause the skin
to blister and tear at the slightest touch leaving raw, open wounds. EB can
affect the feet only or any part of the body including blistering on the eyes and
internal organs including the throat.
In severe cases it can be fatal.
DEBRA provides community care and support that aims to improve quality of
life for the thousands of children and adults living with EB in the UK today.
DEBRA also funds pioneering research that aims to secure effective drug
treatments for every type of EB, drug treatments that could help stop the pain
of EB.
If you would like to find out more about the charity, please visit